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Seizure Tracker Software that helps empower people living with seizures to play an active role in their own healthcare with an app or on their website.
Tuberous Sclerosis Alliance TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs. It’s also the leading genetic cause of both epilepsy and autism.
Dravet Syndrome Foundation Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy
Lennox Gastaut Syndrome Foundation Lennox-Gastaut Syndrome (LGS) is a rare epilepsy syndrome that may develop over time from childhood seizures that remain uncontrolled by treatments.
American Epilepsy Society The American Epilepsy Society is one of the oldest neurological professional organizations in this country. The Society seeks to promote interdisciplinary communications, scientific investigation, and exchange of clinical information about epilepsy.
The Epilepsy Foundation of Metropolitan New York The Epilepsy Foundation of Metropolitan New York has been at the heart of the NYC epilepsy community for almost fifty years, and is New York City’s only specialized organization combining epilepsy education, awareness, and advocacy with individualized services such as counseling and vocational supports.
Child Neurology Society/Association of Child Neurology Nurses Child neurologists are specially trained physicians who have followed up their four-year medical school education with a five-year post-graduate training regimen consisting of two years training in pediatrics, one year in general neurology, and two years in pediatric neurology.
Child Neurology Foundation The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support of those dedicated to treatments and cures.
Centers for Disease Control As the nation's health protection agency, CDC saves lives and protects people from health, safety, and security threats.
Muscular Dystrophy Association Since 1950, we've spearheaded efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases. We fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country.
Brain Foundation - Battens Disease Batten Disease is a fatal, inherited disorder of the nervous system that begins in childhood. It is named after the British pediatrician who first described it in1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called neuronal ceroid lipofuscinoses (or NCLs).
National Organization for Rare Diseases (NORD) NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Tourettes Association of America Tourette Syndrome (TS) is a neurodevelopmental disorder that becomes evident in early childhood or adolescence. It is part of the spectrum of Tic Disorders and is characterized by motor and vocal tics.
Ronald McDonald House of the Greater Hudson Valley
The Ronald McDonald House of the Greater Hudson Valley provides families with critically ill and traumatically injured children an atmosphere of comfort, hope and courage, keeping them close to the care and resources they need. The House has 12 bedrooms that are filled to capacity almost every night. We also provide meals, laundry and respite services for our families during their stay. Located on the campus of the Westchester Medical Center in Valhalla, NY, the House is just steps away from the Maria Fareri Children’s Hospital. Since it opened in 2011, more than 1,800 families have called our House their Home.